Zachary- December

This is just a quick upload of some video we’ve taken over the past month or so. IT shows Zach’s great improvement once the seizures stopped on Nov. 6 thanks to God and the ACTH drug treatment.I know it’s long overdue for an update. Things tend to get away from me and updating the blog gets pushed off more than it should. First I want to thank all our family, friends, friends of friends and those we have not met who continually check in for updates and news. We really appreciate it. Back in October, Zachary went through seizures for three weeks while being treated on a medication called Vigabitrin. After the three weeks, the medicine only made the seizures lessen, not fully stop. So on Nov. 1, he was admitted to the hospital to start a new treatment called ACTH – it is a hormone/steroid injection that has been a neurology standard for treating infant spasms since the 1940s. The treatment is one shot a day. The bad thing about the medicine is the potential for nasty side effects like high blood pressure, high glucose levels, weight gain and in worse cases infant diabetes. Now the ACTH medication is made exclusively by a company called QuestCor that basically monopolized the rights, patents, etc on the drug and decided that it would be smart to try and tweak the medication and sink lots of money into research. That was within the last few years. Keep in mind this drug has been in existence since the ’40s. So because Questcor is a small company and they spent millions on the …
Video Rating: 4 / 5